HEALTH PRIVACY RIGHTS
May 8th, 2011 11:00am
SEE FIPA'S NEW EDUCATIONAL WEBSITE ON
"YOUR HEALTH INFORMATION PRIVACY RIGHTS"
FIPA IS A STRONG ADVOCATE OF MEDICAL PRIVACY
We believe that any personal health record that is maintained
by a health care provider is created through a special relationship,
with the expectation that the patient's information will remain
confidential. The confidential nature of this relationship exists
to safeguard and promote the patient's physical and mental health.
Any violation of this confidential relationship may adversely affect
the patient's health and is a violation of their right to privacy.
The right to privacy includes the patient's right to control access to
and use of their personal health information. Any access or use
without their consent is a violation of their right to privacy.
FIPA's DECLARATION OF MEDICAL PRIVACY RIGHTS
February 12, 2002 Click Here
ELECTRONIC HEALTH RECORDS
- WHAT THEY ARE AND WHAT'S AT STAKE
The increasing use of information technology in the health care
system has made the privacy and security of medical records more
important than ever before.
Canada’s federal and provincial governments plan to create an
“Electronic Health Record” (EHR) for every Canadian. BC’s
provincial government is advocating that all patients’ electronic
records be stored in a single “clinical data repository.” This would be
similar to creating one large medical information warehouse to store
all the files of every patient in BC.
EHRs have the potential to improve patient care by making it easier
for physicians to access patients’ information. The problem is,
under current plans, patients will not have control and/or a right
of consent over who has access to their medical information when
it is managed in electronic form on regional and national networks.
FIPA advocates that patients should have the ultimate control over
their own medical information and a right of consent over who may
have access to it.
HEALTH PRIVACY NEWS AND ANALYSIS
ELECTRONIC HEALTH RECORDS RAISE PRIVACY CONCERNS
May 18, 2011 Click Here
BC'S E-HEALTH JOINS SICK LIST
February 19, 2010 Click Here
PLANS FOR E-HEALTH RAISE HUGE THREATS TO PRIVACY FOR CANADIANS
June 11, 2009 Click Here
CANADA HEALTH INFOWAY'S BILLION-DOLLAR PLAN FOR NATIONAL
ELECTRONIC HEALTH RECORDS DOOMED TO FAIL, EXPERTS SAY
IN CMA JOURNAL
May 6, 2011
Canada Health Infoway’s plans for highly-centralized electronic health
records (EHR) systems within each province containing patient records that
can be shared nationwide may not be feasible, a chorus of experts says.
That “shared record” model which Infoway has adopted was in large part
discredited and discarded in the United Kingdom, note the critics, who say
that inadequate consultation with the medical community has also been
a key problem in the development of the system. They suggest Infoway
has forged a “Soviet-type” over-centralized approach based on a top-down
vision of a “federated set” of “health information data warehouses” with
highly centralized access to “shared records” (figure 2, EHRS BLUEPRINT
Infoway’s strategy has delivered few independently-verified benefits to
patients or health care providers, and may not even be achievable as
designed, the analysts say.
“Massive centralized systems almost always fail,” warned Norman Archer,
ehealth policy analyst with the eBusiness Research Centre at McMaster
FULL ARTICLE: Medical data debates: Big is better? Small is beautiful?
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CANADIAN MEDICAL ASSOCIATION
Principles for the Protection of Patients’ Personal Health Information (2011)Click Here
A DELICATE BALANCE - PRIVACY, ACCESS AND DATA STEWARDSHIP
Canadian EMR Frontline News February 24, 2011 Click Here
SCATHING REPORT DETAILS BOTCHED E-HEALTH PLANS
By Vaughn Palmer, Vancouver Sun, February 18, 2010
The B.C. Liberal drive for electronic records-keeping in the health care system is behind schedule, over budget, poorly planned and still a long way from realizing any benefits to patients, according to auditor general John Doyle.
Doyle released a report Wednesday Click Here that chronicled a list of failings so comprehensive as to raise doubts about whether the Electronic Health Records project could be said to be "managed" in any proper sense whatsoever...
The report marks the second time in a week that the auditor general has been highly critical of electronic record keeping in the health care sector. Last Wednesday, he blasted the Vancouver Coastal Health Authority for inadequate security on the electronic records it maintains on some 600,000 patients receiving residential care and other services. (Report: Click Here Article, Vancouver Sun: Click Here) The problems were so extensive Doyle held off releasing that report for six months, until the authority could address more than 100 recommendations for improving security and protecting patient privacy.
VAUGHN PALMER: THREE COLUMNS ON THIS TOPIC Click Here
PRIVACY AND CANADA’S HEALTH INFORMATION HIGHWAY
A FIPA presentation to the Information and Privacy Conference
Victoria, BC, Feb. 14, 2002 Click Here
PERSONAL HEALTH INFORMATION AND THE RIGHT TO PRIVACY IN CANADA
FIPA's overview of statutory, common law, voluntary and constitutional privacy protection
May 2000 Click Here
ALBERTA'S HEALTH INFORMATION ACT AND THE CHARTER: A DISCUSSION PAPER