BC FIPA letter to Senate Committee regarding Bill C-27 and quasi-governmental bodies – 17 May 2002

BC FIPA has sent a letter to Senator Nicholas W. Taylor, Chair of the Standing Committee on Energy, the Environment and Natural Resources regarding the creation of a quasi-governmental body if Bill C-27 is enacted.

BC FIPA is concerned that this body has significant power over decisions that affect the public, responsibility for enormous spending decisions, and as currently defined would be fundamentally unaccountable to Parliament or to the Canadian public. BC FIPA urges the Committee to propose an amendment to Bill C-27 that would extend the Access to Information Act and the Privacy Act to the Waste Management Organization.

BC FIPA believes that democracy is both degraded and diminished when large sectors of government authority are placed beyond the accountability and openness measures of these Acts.

Read the full letter (doc).

Privacy and Canada’s Health Information Highway – A presentation by BC FIPA to the Information and Privacy Conference in Victoria — 14 Feb 2002

BC FIPA believes the issue of HEALTH INFORMATION PRIVACY as the most significant privacy issue of our time. This presentation outlines the importance of the right to privacy and the threats that “Health Info-structure” represents.

Provincial governments appear to believe that the diminution of privacy rights is essential to the creation of the “Canadian Health Info-way”.

BC FIPA disagrees. We think Canadians can have privacy rights AND the highest quality health care system.

Download the full presentation (pdf).

BC FIPA publishes Declaration of Medical Privacy Rights

BC FIPA has published a Declaration of Medial Privacy Rights in light of the push towards electronic health records and electronic information management systems.

Declaration of Medical Privacy Rights

The Right to Privacy is a human right and is fundamental to my dignity as a human

My right to privacy extends to all my personal health information, regardless of the
format in which it is recorded.

Any personal health record maintained on me by any health care provider is created through a special relationship, with the expectation that my information will remain confidential. The confidential nature of this relationship exists to safeguard and promote my physical and mental health. Any violation of this confidential relationship may adversely affect my health and is a violation of my right to privacy.

The right to privacy affirms my right to control access to and use of my personal health information. Any access or use without my consent is a violation of my right to privacy.

Fundamental to my right to privacy of health information is the right to:

a) be told why specific information is requested and if it will be part of a physical record,

b) know who will have access to any of my health information and for what purpose,

c) refuse access to all or portions of my information,

d) expect an audit trail that will identify who has accessed my health information,

e) expect my health information will be maintained in a secure environment that will prevent any unauthorized access,

f) request and receive an accurate and complete copy of my health records in a timely

g) have corrected any factual error in the records. If there is a disagreement about the
accuracy of the records, it is my right to have the disputed information clearly identified and to append to the records what I believe to be the correct information,

h) expect the information will be retained for a length of time appropriate only to the primary reason for which it was obtained. Any retention beyond this length of time must be done with my consent, and

i) seek an effective remedy should any of these rights be violated.

Download the Declaration.